Comments on: Turning the Tide of Behaviourism

By: Dorothy Eason

Dorothy Eason — Thu, 19 May 2022 16:43:03 +0000

.y daughter is 50 and I would so like to help her but there is no help

By: Jan Groh

Jan Groh — Sat, 29 Jun 2019 03:06:05 +0000

I’m a relative newcomer to the field (2012), by way of the (newly recognized in 2017) Hypermobility Spectrum Disorders and (hypermobile in my case) Ehlers-Danlos syndrome. After turning into a reluctant but effective support group leader from my wheelchair where I suddenly landed in January 2012, I kept finding everyone I met in these circles to be either on, or related (or married) to someone on the spectrum.

Then, I fell down the MCAD rabbithole (another major comorbdity that a leading researcher has firmly tied to autism – see Dr. Theoharis Theoharides in 2015), and the trend only continued. And I kept picking up yet more comorbidities. (Dysautonomia, weak immune system, CVID, autoimmune diseases, more.)

I humbly submit my observations here: http://ohtwist.com/the-chronic-constellation

And will say that I’m now followed by several hundred autists on Twitter and Facebook and my work has been used and presented in South Africa. I’ve yet to meet a hypermobile person who doesn’t have mild or more signs of neurodivergence (in my unprofessional and very unscientific opinion), or vice-versa. I haven’t met any autistic people or neurodivergent ones (cousins) without signs of mild or more hypermobility, or connective tissue disorder at a minimum. Most may just be swept under the rug and unrecognized yet.

And yes, many do much better once these very real medical comorbidities are addressed.

By: Michael Williams

Michael Williams — Wed, 26 Jun 2019 14:23:11 +0000

Rom’s comments resonate strongly with me. After 16 years of autism research following the diagnosis of my grandson I’m convinced that we need a paradigm shift in the way we respond to and treat autism. Co-morbidities and metabolic errors shown by various tests need to be investigated by physicians and not ignored because the individual is labelled autistic!

By: Tracy

Tracy — Wed, 26 Jun 2019 10:31:02 +0000

Thank you for your incredibly moving post. I am a parent of a child with moderate autism and the Thinking Autism conference has literally changed our lives. My son has one of the genetic mutations discussed and we immediately introduced the recommended supplements with some very positive initial results. Words can’t express how grateful I am to Thinking Autism for opening my eyes – my only wish is that we weren’t at the very beginning of this age of autism discovery but closer to the end so that all of the beautiful children and adults affected by autism were able to receive the treatment and care that they so deserve.